Comments on: Backpacking with Ulcerative Colitis https://thetravelscribes.com/backpacking-ulcerative-colitis/ Writers Wandering The World Mon, 21 Sep 2020 13:07:08 +0000 hourly 1 https://wordpress.org/?v=6.4.1 By: Monica Sharma https://thetravelscribes.com/backpacking-ulcerative-colitis/#comment-50 Tue, 03 Sep 2019 09:41:03 +0000 https://thetravelscribes.com/?p=809#comment-50 Hey James kuddos to your spirit to go for a vacation even after being diagnosed with a disease really enjoyed reading your article and felt quite motivated to do something in future if anything like this arises with me also, thansk for sharing this article will help others too.

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By: Christine https://thetravelscribes.com/backpacking-ulcerative-colitis/#comment-2 Thu, 06 Jun 2019 13:39:30 +0000 https://thetravelscribes.com/?p=809#comment-2 I am so glad that you enjoyed the post I wrote as well as the honesty. Thank you for reaching out, too!

UC is tough. When I first got diagnosed, I tried to avoid everything online. I feel like people search the web for answers but mostly find that information disheartening. It’s easier to complain or be sad vs talk about the positive. (It’s like reviews–studies show that we are more likely to write a bad review than waste our time writing a good one). Forums scared me so I just stopped completely talking about it, which doesn’t help anyone.

I started with Asacol, too, and was on it for about 7 years. Sadly, my new insurance stopped covering it (gahhh), and I am on Apriso (basically the same drug) along with Remicade infusions. For now, they work–and I love being able to eat all the good veggies again.

I am so glad that you are still traveling. It is possible. There will be good days and bad, but you have to be you and live your life. I truly believe that everything falls into place, and you can get care anywhere in the world. I look forward to following you on your adventures.

Plus, UC makes life more interesting. I am not defined by it, but UC changed my life. I had to alter my life–I just HAD too. It’s taught me a lot and added an unexpected element. I am not sure how my life would have turned out without it, where I would have lived, and what my job would be (I quit working with the public since autoimmune suppressants make it nearly impossible), but I’m happy for who I’ve become dealing with it. I hope you will be too. I will never stop traveling–that’s for sure! We got this!

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